May 2023 Newsletter
C.U.R.E. is here.
From the day of diagnosis, throughout treatment and beyond:
The support doesn’t stop when the treatment stops.
And we are so thankful for our Friends who make our support possible.
We are so grateful for the amazing Oncology Nurses that care for our Kiddos!
Be sure to thank an Oncology Nurse, especially this month!
Spotlight on: Kinsley
Meet our Friend, Kinsley.
Kinsley is almost a year and a half old! She was diagnosed with T-Cell A.L.L. Leukemia in March 2023. When she is at the hospital, she likes to watch Ms. Rachel and play on the play deck. Kinsley is a fighter! Experiencing Leukemia at such a young age is tough, but she is tougher! One this is for sure: She LOVES her Family. Even though she’s little, she sure can be sassy!
Sending love to Kinsley and her Family as they navigate her treatment.
Hey, C.U.R.E. Parents:
Did you know we have a private Facebook Group JUST for you? Connect with other parents. Ask questions about treatment, education help and more. Learn from others.
Contact us to learn more!
April Parents’ Night Out
What a delicious night of truffle making together for our Parents’ Night Out with Laughing Gull Chocolates.
C.U.R.E. Parents: look for sign up information in the Program emails or the Facebook Parent Group to join us at our next Parents’ Night Out!
Grandparents’ Day Out
Grandparents’ Day Out was a success! Seven of our C.U.R.E. Grandparents were able to connect and share their journeys with each other. They offered suggestions and exchanged contact information.
Watch for Program Emails and in the Facebook Parent Group for future meet ups!
SAVE THE DATE!!
C.U.R.E. Childhood Cancer Association’s Survivor’s Day Picnic will be held on Saturday, June 3, 2023 this year.
Mark your calendar!
FREE Family Portrait Mini Sessions!
C.U.R.E. Families,
We are partnering again with our Friend Lindsay from That’s Darling Portraits in June for free mini photo sessions! We would love for our Families who haven’t had the opportunity for photos to get first dibs on the time slots. Lindsay will be photographing in the evenings for four sessions in June at Highland Park.
Stay tuned to your Program Emails and the Closed Facebook Group for Parents to learn about how to sign up!
Resources:
Childhood Cancer Survivor Scholarship and Employment Resources:
Children's Cancer Cause is assisting childhood cancer patients, survivors and families by centralizing most national resources that provide scholarships for survivors of childhood cancer or those with particular effects. The site also has resources and advice relating to employment and applying for these scholarships.
Some opportunities require commitment to a childhood cancer advocacy project while in college, while others make you eligible for you just being you. But you do need to apply! Be sure to read the instructions and qualifications very carefully. Apply in plenty of time to get feedback from family, guidance counselors and others. Board Member, Jacob Adams, would be happy to help if given at least two weeks’ notice. Please contact the office for his e-mail address.
Catching Dreams
Catching Dreams Charters, Inc. hosts private fishing charters near Buffalo on Lake Erie or the Niagara River for pediatric oncology or hematology children.
We have connected with Captain Ned, the Founder of this organization, and would love to connect our C.U.R.E. Kids to Ned and schedule some fishing charters! Charters are scheduled for during the week from mid-May through Labor Day and leave from the Buffalo Harbor or near the Niagara River.
Please reach out to Captain Ned if you are interested in a private fishing charter.
Donate Blood or Platelets!
Many of our children depend on blood transfusions and blood products in the course of their treatment. Our children are in need of blood products and you can help! Please consider donating blood if you are well enough to.
YOU can help C.U.R.E. for FREE
Follow us on social media:
Facebook: facebook.com/curekidscancerrochester
Instagram: @curekidscancer
Twitter: @curekidscancer_Write a review about C.U.R.E. on our Facebook Page or on Google.
Write a blog that can be shared on our website.
Contact our Parent Advocate Michelle about doing a Facebook Live or Instagram Takeover.
“Like”, Share or Comment on our social media posts.
Conquer Cancer in Kids:
make childhood cancer research a priority:
UPDATE: THE PETITION IS JUST SHY OF BEING ONE OF THE MOST SIGNED PETITIONS ON CHANGE.ORG. THE GOAL IS 15,000 SIGNATURES AND AS OF 4/28/2023, THERE ARE 14,965 SIGNATURES!
We invite our families and supporters to join CNN’s Rene Marsh as she advocates to make childhood cancer research a priority! Sadly, Rene lost her two year old son, Blake, to brain cancer in April 2021. She is now working with CNN and childhood cancer awareness advocates to make a difference!
To review and sign the petition, click the button below.
Petition to the Biden Administration to increase funding for childhood cancer research. This effort was started through awareness from The Ellen Show.
80,704 signatures of 150,000 wanted (as of 4/28/2023)
GRYT Health connects patients and caregivers to others with shared experience and to information relevant to their journey.
Through the GRYT app, we’ve created a platform for people affected by cancer to connect to others with similar experiences, and to tailored information that helps our users become more aware of options specific to their needs or diagnosis – empowering them to make choices that are right for them.
Our community of patients, survivors, medical professionals, researchers and advocates across all 50 states in the U.S. and in more than 100 countries worldwide have participated in almost 1,000,000 interactions to date, inspiring people to live according to their own standards.
Trust from our community is paramount to our success and something we take very seriously. We never share any of our users’ information without their explicit permission. Unlike other apps, GRYT is the first social community that is funded, built, and run by patients and caregivers where users communicate anonymously in real-time and each person is 100% in charge of what happens with their data.
Learn more about Bill A6430B
Creates the Sickle Cell Disease detection and education program
Sponsored by Hyndman
Thank you 5k and Fun Walk Participants and Partners!
Grateful…
We are beyond grateful for the participation in our 14th Annual 5k and Fun Walk presented by Cornerstone Wealth Management.
Over 550 individuals registered!
Over 460 donations received!
We are humbled. We are overjoyed. Our hearts are full.
Thank you!
Girl Scout Troop #40222 is kind!
We are so grateful for our Friends at Girl Scout Troop #40222 for thinking of our Families. We received a generous donation of items to be given to our C.U.R.E. Kids and Families from Troop #40222. Thank you for thinking of us!
Jefferson Avenue School’s Slam Dunk!
Wow! Our Friends at Jefferson Avenue School sure scored a slam dunk with their Charity Basketball Game! We are the gracious recipients of the proceeds generated at the game: a WHOPPING $2,620! Thank you for thinking of our Families!
Keep Shining, RDI!
A huge thank you to our Friends at RDI Diamonds who continue to let our Families know they are not alone in their battles. Our Friends at RDI Diamonds care about our Families and about C.U.R.E. fulfilling our mission of supporting them. We continue to be grateful for the advocacy and support!
Dawgs Up!
Another BIG thank you to our Friend Shari Miller, representing Julianne’s Journey to Christmas Joy, and The Dawgs for hosting an event in February to support our Families! The night was full of great music and great food (seriously, check out Buntsy’s Neighborhood Food & Drink). We are touched that Shari and The Dawgs continue to support our Families!
To learn more about Shari and her daughter, Julianne, please check out the news story below:
September is important!
Please consider joining C.U.R.E. in our efforts to raise awareness during September! Join our Committee!
We need help:
- Recruiting restaurants for our Liquid Gold for C.U.R.E. Challenge
- Moving flamingos in September
- Reaching out to local municipalities for proclamations
- Reaching out to local schools for awareness campaigns
- Reaching out to fire stations and community centers with digital boards
- NEW IDEAS!
** NEED HELP WITH GRAPHIC DESIGN FOR A BIG ROCHESTER VS. BUFFALO PROJECT
Come Tend to our Garden!
We are looking for Friends to come help honor our Angel Kiddos and take care of our Julie Roberts Children’s Memorial Garden. The sign ups are set for Sundays at 9 AM, but you can come any time you want during that week.
It’s so important that our garden looks beautiful for our little Angels. We are so appreciative of our Volunteers.
Caring for our garden includes pruning trees and shrubs and weeding the garden beds and Remembrance Walkway.
Join our Board of Directors!
We have some Board positions opening in the very near future! Interested in applying?
The Board meets monthly for 1.5 - 2 hours (Currently the third Wednesday evening of the month from 5:30 - 7:30)
Board members must attend two of the three main fundraisers (5k & Fun Walk, Golf Tournament, Brunch)
Board members are on at least one sub-committee
Board members make a monetary donation for the Board sponsored Live Auction package for the Brunch
Applications can be emailed to:
cureboardapplications@gmail.com
We want to connect!
If you served on the Board of Directors for C.U.R.E. Childhood Cancer Association, we would love to stay connected! Please email Holly Dutcher to connect!
holly.dutcher@curekidscancer.com
Registration opens May 1st!
Whole Year & Event Specific Partnerships Available for 2023
We would LOVE to partner with you and your business! Reach out and we can chat about the opportunities we have available!
Event specific partnerships can be found on their respective pages:
Don’t forget the JOE!
Don’t forget to check out our Friends at Awareness Coffee Co.! They have many different coffee options AND you can support a cause you’re passionate about (we’re partial to the Pediatric Cancer Blend). A portion of the sale of the coffee will be donated to the charities listed under each cause.
Become a C.U.R.E. Ambassador!
The Support Doesn’t Stop When Treatment Stops…
Because of YOU and your kindness.
Support our mission year-round by becoming a C.U.R.E. Ambassador! A C.U.R.E. Ambassador is a donor who commits to our mission through a monthly donation of his/her choosing. Whatever level you are comfortable with makes a difference!
Click here to learn more.
Every Penny Matters.
Do you want to join forces with C.U.R.E. and participate in our Annual Penny Drive? We make it easy! We can decorate and deliver jugs for your to facilitate your collections. We will also pick up your donations. No change rolling or counting required! Contact our office if your school or business would like to participate!
It makes cents.
Round Up for C.U.R.E.!
We are thrilled to share that we are now part of the Walmart Spark Good program! You can select “C.U.R.E. Childhood Cancer Association” as your charity of choice and round up your purchases! The rounded up change will be donated to C.U.R.E.!
STEP 1: Visit walmart.com/sparkgood and sign in to your Walmart.com account.
STEP 2: Search for a favorite charity.
STEP 3: Once you choose a charity, go to the Round Up box and click "Select this Charity"
STEP 4: Review the FAQs and the Terms of Use.
Sickle Cell Advocates of Rochester
C.U.R.E. Partners:
You can now return your cans and bottles to Alpco Recycling and Bottle & Can Retrieval Centers! Let them know you’d like to support “C.U.R.E. Childhood Cancer Association” and a donation will be made to us!
Alpco Recycling is located at:
846 Macedon Center Road, Macedon, NY 14502
Bottle & Can Retrieval Centers located at:
509 Spencerport Rd, Rochester
2199 East Henrietta Rd, Rochester
2374 Chili Ave, Rochester
More ways to help:
Rock C.U.R.E. Elite Sport Socks!
These super comfortable and supportive sport socks are HERE! What a great way to show support for C.U.R.E. and small businesses, they are made in the USA! Rock them while you are working from home or out exercising. Sandal season is over, rock these cozy socks today!
C.U.R.E. has joined the PayPal Giving Fund. Please consider adding us to your account to Shop, Donate and Raise Awareness for our families.
PayPal Giving Fund expands our fundraising reach through direct integration with PayPal, eBay and GoFundMe.
Bereavement Group
Bereavement Group for May will be held at the C.U.R.E. office at 200 Westfall Rd, Rochester, NY 14620 No RSVP is required.
Please reach out to Michelle Magin at
michelle.magin@curekidscancer.com with any questions.
Did you know? For children who have experienced the death of a sibling from childhood cancer, SuperSibs offers additional mailings through the Grief and Loss Mailing Program.
This program includes...
💛 Grief support and resources specifically for parents
💛 4 mailings per year for two years with activities designed to help SuperSibs to cope with their grief and feelings
💛 A special remembrance on the anniversary of their sibling’s passing
Learn more about this free program for siblings:
Click Here To Check it Out
We are so grateful to the community for all of the wonderful donations we receive throughout the year. We could not service all the families we do without this generous support. If you or a community group you belong to is looking for something to do for a charity, please consider donating items from C.U.R.E.’s wish list so that we can continue to provide for our families:
A cure for childhood cancer, blood diseases and brain tumors!
- Buffalo Bills items (hats, gloves, socks, etc.) for teen gifts
- SQUISHMALLOWS! ALL SIZES! The kids love them!
- Universal phone chargers with long cords
- Gift cards for Wegmans, Tops, Wal-Mart, Target and gas cards
- Gift cards for GrubHub, McDonalds, Wendy’s, Burger King, Moe’s, Chipotle, Dunkin Donuts and Starbucks
- Crafts for young adults and children
- Items for teens or young adults
- Toys (Please look at our Amazon Wish Lists:
Under $20: https://a.co/hlW4hCO
$20 - 50: https://a.co/eHiQcV2
$50+: https://a.co/bVDujCy)
We ask that all items be new and recently purchased. Thank you!