November 2022 Newsletter
C.U.R.E. is here.
From the day of diagnosis, throughout treatment and beyond:
The support doesn’t stop when the treatment stops.
And we are so thankful for our Friends who make our support possible.
Spotlight on: Remi
Meet our friend, Remi.
Remi loves Sesame Street, reading books, dancing and music, playing with balls and being with friends and Family. Her Teacher says she has the happiest demeanor and her Family agrees! She loves to be outside and go on adventures. Remi loves being a big sister to her new little baby brother, too!
Remi was diagnosed with Acute Lymphocytic Leukemia (ALL) on July 21, 2022. While in the hospital, she likes to go for walks and see the horse statue (or "neigh" as Remi calls it) at the front of the hospital. She loves to walk outside around the hospital and go see Remi's Rock Garden. She loves to play with balls in the play deck. She also loves to have the doctors and nurses listen to her heart and lungs with their stethoscope!
Remi’s Family shared that they are so grateful for their incredible health care team, C.U.R.E. family, and all of the support through this challenging and humbling time.
Hooray, Maddox!
Sending love and congratulations to Maddox who, along with his Family, came and rang the End of Chemo Bell in our office on October 19th. He also added his Handprint on the “Handprints of Hope” wall we have here at the office and we treated him to an assortment of his favorite snack: Brownies!
Thanks, VerHulst Haunted Hayride
Many thanks to VerHulst Haunted Hayride for an incredible evening of frights and sights on October 14th. Thank you for your generous ticket donations and a fun night riding through the forest with the ghosts, ghouls and many more scary characters. Our C.U.R.E. Parents enjoyed a SPOOKTACULAR night as a result of your kindness!
Reaching new heights together!
Parents’ Day Out at Bristol Mountain Aerial Adventures was an afternoon of reaching for the tree tops. Each level was more challenging than the next. It was a beautiful fall day to take on this adventure together. Many thanks to Bristol Mountain staff for all of their help to make this day happen. Stay tuned for the next Parents’ Night/Day Out!
Turkeys for C.U.R.E. Families
Thanks to a generous donation from West Herr Auto Group, we are pleased to be able to offer 10-15 lb turkeys to our C.U.R.E. Families this year along with other miscellaneous dry goods. Supplies are limited so call 585-473-0180 or sign up below to reserve yours today!
All Aboard! The Polar Express!
Please join us for C.U.R.E. Childhood Cancer Association’s annual Holiday Party on Wednesday, December 7th
”Why, to the the North Pole, of course!”
Be sure to wear your pajamas!
Resources:
Childhood Cancer Survivor Scholarship and Employment Resources:
Children's Cancer Cause is assisting childhood cancer patients, survivors and families by centralizing most national resources that provide scholarships for survivors of childhood cancer or those with particular effects. The site also has resources and advice relating to employment and applying for these scholarships.
Some opportunities require commitment to a childhood cancer advocacy project while in college, while others make you eligible for you just being you. But you do need to apply! Be sure to read the instructions and qualifications very carefully. Apply in plenty of time to get feedback from family, guidance counselors and others. Board Member, Jacob Adams, would be happy to help if given at least two weeks’ notice. Please contact the office for his e-mail address.
If you are in need of support this Holiday Season, please check out this document that lists support services available locally.
Catching Dreams
Catching Dreams Charters, Inc. hosts private fishing charters near Buffalo on Lake Erie or the Niagara River for pediatric oncology or hematology children.
We have connected with Captain Ned, the Founder of this organization, and would love to connect our C.U.R.E. Kids to Ned and schedule some fishing charters! Charters are scheduled for during the week from mid-May through Labor Day and leave from the Buffalo Harbor or near the Niagara River.
Please reach out to Carol Austin if you are interested in a private fishing charter.
Any Teens with Sickle Cell Interested…
Dr. Noronha is trying to gauge interest from local teens with Sickle Cell Disease around having Zoom Meet Ups this summer. If you (or your child) is 13 years old - 17 years old and interested, please contact Dr. Noronha.
Donate Blood or Platelets!
Many of our children depend on blood transfusions and blood products in the course of their treatment. Our children are in need of blood products and you can help! Please consider donating blood if you are well enough to.
YOU can help C.U.R.E. for FREE
Follow us on social media:
Facebook: facebook.com/curekidscancerrochester
Instagram: @curekidscancer
Twitter: @curekidscancer_Write a review about C.U.R.E. on our Facebook Page or on Google.
Write a blog that can be shared on our website.
Contact our Parent Advocate Michelle about doing a Facebook Live or Instagram Takeover.
“Like”, Share or Comment on our social media posts.
Conquer Cancer in Kids:
make childhood cancer research a priority:
UPDATE: THE PETITION IS JUST SHY OF BEING ONE OF THE MOST SIGNED PETITIONS ON CHANGE.ORG. THE GOAL IS 15,000 SIGNATURES AND AS OF 10/4/2022, THERE ARE 14,829 SIGNATURES!
We invite our families and supporters to join CNN’s Rene Marsh as she advocates to make childhood cancer research a priority! Sadly, Rene lost her two year old son, Blake, to brain cancer in April 2021. She is now working with CNN and childhood cancer awareness advocates to make a difference!
To review and sign the petition, click the button below.
Petition to the Biden Administration to increase funding for childhood cancer research. This effort was started through awareness from The Ellen Show.
79,053 signatures of 150,000 wanted (as of 10/4/2022)
GRYT Health connects patients and caregivers to others with shared experience and to information relevant to their journey.
Through the GRYT app, we’ve created a platform for people affected by cancer to connect to others with similar experiences, and to tailored information that helps our users become more aware of options specific to their needs or diagnosis – empowering them to make choices that are right for them.
Our community of patients, survivors, medical professionals, researchers and advocates across all 50 states in the U.S. and in more than 100 countries worldwide have participated in almost 1,000,000 interactions to date, inspiring people to live according to their own standards.
Trust from our community is paramount to our success and something we take very seriously. We never share any of our users’ information without their explicit permission. Unlike other apps, GRYT is the first social community that is funded, built, and run by patients and caregivers where users communicate anonymously in real-time and each person is 100% in charge of what happens with their data.
Girl Scout Troop 60140 are Good Neighbors!
We are so grateful for our Friends in Girl Scout Troop 60140 who earned their “Be a Good Neighbor” badge by making a bracelet for themselves and putting together kits for C.U.R.E. Kids. The girls wanted to support a child in their community and try to bring a smile to their faces during difficult times. The girls worked together and bonded over making the kits together. Twenty kits in total were donated. Additionally, the sister of one of the Troop Members, Ellie, donated earrings that she handmade!
Thanks, Girls!
Thank you, Herrmann Family!
In celebration of Scott Herrmann’s birthday, he and his Family asked for donations to C.U.R.E. to recognize 20 years cancer free! We were so humbled to be a part of the celebration. Over $4,000 was raised as a result of their kindness! Wishing you many more happy birthdays, Scott. Thank you for thinking of our Families!
Thank you, RDI!
RDI Diamonds came through again in October with an incredible donation. Monthly, they are contributing a portion of their commissions to help our Families. We are blown away by their kindness.
Thank you for working so hard to provide our Families with the practical support we provide. Thank you for championing our Mission. What an honor it is to get to work with such dedicated Community Members!
Thank you, Crash Cadillac
We received a very generous donation from the folks at Crash Cadillac. They collect can tabs at their shows in honor of our Friend Hailey for the “Keeping Tabs on Cancer With Hailey” program. Hearts for Hailey has been dedicated to C.U.R.E. and raising money for our parking voucher program for many years. Their kindness, and the kindness of those around them who collect can tabs, has made a significant impact on our Families: helping to pay for their parking fees at Golisano Children’s Hospital. Thank you!
Thank you,
Sage Rutty!
Thank you for your recent donation to our organization! Your contribution makes a tremendous difference to our Families!
Holiday Volunteers Needed!
We will need Volunteer help at our office during the Holidays!
What: wrapping gifts for our Families, pulling gifts for our Families, helping prepare for the Holiday Celebration, help during the Holiday Celebration and more!
Holiday Sponsors Wanted
We are looking for generous Friends in the Community who want to sponsor a Family for the Holidays. Reach out if you are interested. Please let us know what size Family you would like to sponsor (approximately $150-200 spent per child) and we will send you a wish list no later than November 23rd. You shop then return the gifts wrapped, labeled and in black contractor bags by December 14th.
Shop our Amazon Smile Holiday Wish Lists
Join our Board of Directors!
We have some Board positions opening in the very near future! Interested in applying?
The Board meets monthly for 1.5 - 2 hours (Currently the third Wednesday evening of the month from 5:30 - 7:30)
Board members must attend two of the three main fundraisers (5k & Fun Walk, Golf Tournament, Brunch)
Board members are on at least one sub-committee
Board members make a monetary donation for the Board sponsored Live Auction package for the Brunch
Applications can be emailed to:
cureboardapplications@gmail.com
We want to connect!
If you served on the Board of Directors for C.U.R.E. Childhood Cancer Association, we would love to stay connected! Please email Holly Dutcher to connect!
holly.dutcher@curekidscancer.com
SATURDAY, NOVEMBER 5th!
Join local Artisans and Vendors at the Italian American Community Center from 10 AM - 4 PM and SUPPORT LOCAL this Holiday Season. Start (or finish…depending on where you’re at) your Holiday Shopping and support C.U.R.E. at the same time!
We hope to see you there!
It’s time to get cozy!
We are so excited to share that we are again partnering with our Friends at Peachskin Sheets this year!
Save $30 per sheet set by purchasing through our fundraiser! We will share the ordering website and our code as we get closer. Sheet sets are $65/set and $20/set will be donated back to C.U.R.E. to further our mission!
Use coupon code “Childhood1” at check out.
It’s back!
Race With Grace 3.0 is back and better than ever this year!
NEW LOCATION: Lakeshore Community Church (3651 Latta Road, 14612)
The entry fee includes a long-sleeved tech shirt. (The 1/4 Zip up can be upgraded at check out instead of the L/S T-Shirt) Sizes are guaranteed if you register prior to November 1, 2022. There will be plenty of food and refreshments, complete computerized race results available online, and race photos. Awards will be given to top male and female finishers in the Open, Masters (40+), Veterans (50+), and Seniors (60+) categories, as well as the 1st, 2nd, and 3rd place finisher in each age group
Become a C.U.R.E. Ambassador!
Think we can get to 46 C.U.R.E. Ambassadors by the end of the year to recognize our 46 years of making a difference in the Rochester Community? We’re half way there!
The Support Doesn’t Stop When Treatment Stops…
Because of YOU and your kindness.
Support our mission year-round by becoming a C.U.R.E. Ambassador! A C.U.R.E. Ambassador is a donor who commits to our mission through a monthly donation of his/her choosing. Whatever level you are comfortable with makes a difference!
Click here to learn more.
BOGO this Holiday Season
Buy One GIVE One this Holiday Season.
Our Holiday Heroes Campaign is kicking off and we are encouraging our Friends to buy a message and give some love to a special Hero in your life.
Recognize someone special: a neighbor, a medical professional, a little warrior…Heroes come in all sizes!
Hero Messages and Ads will be available digitally, but will also be printed in the Democrat & Chronicle and Canandaigua Post the week of Christmas. Share the Hero in your life with everyone around you.
It’s time to get tacky!
Our Annual Tacky Sweater Party is back again and we can’t wait to see your Tacky Sweaters! Nosh is kindly hosting us, once again, and offering food and drink specials where a portion of the sale will be donated to C.U.R.E.!
We have NEW features this year including:
- Guest Bartenders
- Holiday Toy Drive
- A Prize wheel
and more!
This is one event you WON’T want to miss!
As always, prizes will be awarded for the Tackiest Sweaters, so get your glue guns and Cricuts out! Great creative. And let’s kick off Holiday Celebration season with some fun!
Wanted:
ROC Stars
ROC The Day is Tuesday, November 29th and we are looking for some ROC Stars! Be a ROC Star and support our mission. Our goal is to honor 46 years of making a difference in our community.
Let’s Get Cookin’
Join us for a fundraiser for C.U.R.E. through the Pampered Chef and raise money for C.U.R.E. Ramp up for your holiday shopping all while supporting our Families!
Thank you, Lynne, for setting this event up!
Every Penny Matters.
Do you want to join forces with C.U.R.E. and participate in our Annual Penny Drive? We make it easy! We can decorate and deliver jugs for your to facilitate your collections. We will also pick up your donations. No change rolling or counting required! Contact our office if your school or business would like to participate!
It makes cents.
Want to help make a difference while you shop in the Amazon app, at no extra cost to you?
Simply follow the instructions below to select "C.U.R.E. Childhood Cancer Association" as your charity and activate AmazonSmile in the app. They'll donate a portion of your eligible mobile app purchases to us.
How it works:
1. Open the Amazon app on your phone
2. Select the main menu (=) & tap on "AmazonSmile" within Programs & Features
3. Select "C.U.R.E. Childhood Cancer Association" as your charity
4. Follow the on-screen instructions to activate AmazonSmile in the mobile app
C.U.R.E. Partners:
You can now return your cans and bottles to Alpco Recycling and Bottle & Can Retrieval Centers! Let them know you’d like to support “C.U.R.E. Childhood Cancer Association” and a donation will be made to us!
Alpco Recycling is located at:
846 Macedon Center Road, Macedon, NY 14502
Bottle & Can Retrieval Centers located at:
509 Spencerport Rd, Rochester
2199 East Henrietta Rd, Rochester
2374 Chili Ave, Rochester
More ways to help:
Winter is coming…
Get a-HEAD of the season and order your Love Your Melon + C.U.R.E. Beanie today! It’ll be winter before we know it.
These make great Holiday gifts, as the quality of Love Your Melon Hats is second to none. Wash and dry your hat as needed.
The best part? For every beanie purchased from Love Your Melon, they GIVE one to a child battling cancer!
C.U.R.E. has joined the PayPal Giving Fund. Please consider adding us to your account to Shop, Donate and Raise Awareness for our families.
PayPal Giving Fund expands our fundraising reach through direct integration with PayPal, eBay and GoFundMe.
Bereavement Group
Bereavement Group occurs on the first Wednesday of every month.
We will be hosting the Bereavement Meeting at the C.U.R.E. office at 7 PM on November 2, 2022.
We will be doing an angel wing ornament craft.
For more information, please reach out to Michelle Magin.
michelle.magin@curekidscancer.com
Parents, Family Members and Friends are invited to attend a special ceremony to remember and celebrate the precious lives of children lost to cancer and chronic blood disorder. Please join us at the Italian American Community Center located at 150 Frank Dimino Way, Rochester, NY 14624 on Sunday, November 6th at 2 pm with light refreshments to follow.
For those who cannot attend in person, please call or email requesting a zoom link.
We recently sent an email about sending in your photos. Please reach out if you did not receive the email.
Reservations are required by Tuesday, November 1st, 2022. Please respond via the link below, or email Carol.Austin@curekidscancer.com or call 585-473-0180.
The December Bereavement Meeting will be offsite, but in person, at Painting with a Twist (1100 Jefferson Road, Suite 10, Rochester, NY 14623).
This event is free of charge to our Bereaved Parents participating. C.U.R.E. will provide some treats for our Bereaved Parents who will be painting in lieu of traditional Group.
RSVPs are required. Please click the button below to RSVP.
Did you know? For children who have experienced the death of a sibling from childhood cancer, SuperSibs offers additional mailings through the Grief and Loss Mailing Program.
This program includes...
💛 Grief support and resources specifically for parents
💛 4 mailings per year for two years with activities designed to help SuperSibs to cope with their grief and feelings
💛 A special remembrance on the anniversary of their sibling’s passing
Learn more about this free program for siblings:
Click Here To Check it Out
We are so grateful to the community for all of the wonderful donations we receive throughout the year. We could not service all the families we do without this generous support. If you or a community group you belong to is looking for something to do for a charity, please consider donating items from C.U.R.E.’s wish list so that we can continue to provide for our families:
A cure for childhood cancer, blood diseases and brain tumors!
- Buffalo Bills items (hats, gloves, socks, etc.) for teen gifts
- Colored pencils/art pencils
- Universal phone chargers with long cords
- Gift cards for Wegmans, Tops, Wal-Mart, Target and gas cards
- Gift cards for GrubHub, McDonalds, Wendy’s, Burger King, Moe’s, Chipotle, Dunkin Donuts and Starbucks
- Crafts for young adults and children
- Items for teens or young adults
- Toys (Please look at our Amazon Wish Lists:
Under $20: https://a.co/hlW4hCO
$20 - 50: https://a.co/eHiQcV2
$50+: https://a.co/bVDujCy)
We ask that all items be new and recently purchased. Thank you!
Get your C.U.R.E. Gear
Rock C.U.R.E. Elite Sport Socks!
These super comfortable and supportive sport socks are HERE! What a great way to show support for C.U.R.E. and small businesses, they are made in the USA! Rock them while you are working from home or out exercising. Sandal season is over, rock these cozy socks today!