October 2019 Newsletter
Happy Fall From C.U.R.E.
Thank you for subscribing to our newsletter! We hope you can attend a program or event or support C.U.R.E. this month. Please share our newsletter on your social media profile to spread the word about C.U.R.E.
C.U.R.E. Intern Spotlight
Meet Kelsey
Hi everyone! My name is Kelsey and I’ll be interning with C.U.R.E. until December. I’m currently a Human Services student at Monroe Community College, in hopes of pursuing a further education/degree in Social Work. I found out about C.U.R.E. through a close family friend, Allivea, who is battling a brain tumor and her family has worked with C.U.R.E. This experience has made me decide to intern here for the semester and do everything I can to help out!
Spotlight on Aurora
If you listen to her mom, Crystal or her dad, Kyle, Aurora was a happy, playful one year old. She loved to play with her older brothers, Christopher and James. She also loves the outdoors and even like the game cornhole. Her mom describes her as a pretty easy going child who just loves to help with just about everything. She helps with cooking meals and even likes to help clean the house, although she is quite annoyed that her toy vacuum doesn't actually work. But other than that, she is a pretty happy little girl. Unfortunately for her family, that sweet, happy going girl was recently diagnosed with a form of leukemia called Blastic Plasmacytoid Dendritic Cell Neoplasm Leukemia. That is a mouth full to say, and an even more difficult thing to hear that because of that diagnosis, she will receive 2-5 years of treatment. Both mom and dad have been super supportive of Aurora, often taking turns being in the hospital while the other is at home with their two active boys. Being in the hospital, Aurora has completely charmed the staff who look forward to her stays, but also look forward to the day when she will get to finish her chemotherapy treatment and instead, get to see her at events like C.U.R.E.'s Survivors Day Picnic.
Upcoming C.U.R.E. Programming and Events
Food Bags for C.U.R.E. Families:
We know it can hard to make ends meet when the kids go back to school. We at C.U.R.E. want to help! Please contact the office if you would like to stop by and pick up a food bag. We have staples like peanut butter and jelly and mac and cheese that we hope you’ll find helpful!
Please call the office (585-473-0180) or e-mail staff@curekidscancer.com to set up a pick up time!
Thank You For Your Support
Thank you to Morton Family Fund Day for another wonderful event for our C.U.R.E. families!
Families enjoyed a wonderful luncheon, wagon ride, games, prizes, apple picking, horseback riding and pumpkin picking all put on by our friends at Morton Baptist Church.
Thank you to The Gate House!
For participating and winning the #LiquidGoldforCUREChallenge and making a $1,200 donation.
Upcoming Fundraisers
Mermaid Tail Headband
Who doesn’t want to be a mermaid?
By purchasing your C.U.R.E. Mermaid Headband, you will provide one for a child going through cancer treatment.
Check it out at: https://curecca.ejoinme.org/headbands
Headbands can be mailed to the purchaser!
Peachskin Sheets Fundraiser
Mark your calendars! Our Peachskin Sheets Fundraiser is scheduled for November 3rd thru November 23rd. These sheets are amazing! They are incredibly soft, and wrinkle free, making them the perfect holiday gift. And as a bonus, a portion of your total is donated back to CURE. That means for every sheet set you purchase, you are really giving two gifts!! More details will be available as we get closer to November.
KidCents Rite Aid Round Up Program
By rounding up, you are helping us to reach our goals by simply shopping at Rite Aid. Feel free to invite your friends and family to participate in the program. Imagine the change that your change can make!
See the steps to enroll here!
Baby Boomer Baseball
Our friend, author Robert Kravetz, will be donating $10 for every book purchased to C.U.R.E.!
Want to check out this wonderful book full of stories and stats? Contact him today: rkravetz@brightonsecurities.com or sfasciano@brightonsecurities.com
Awareness Coffee Co.
Our friends at Awareness Coffee are helping to spread awareness about Pediatric Cancer with their coffee made from a specialty bean out of Peru, and roasted to perfection with subtle floral and chocolate notes.
A portion of proceeds will be donated to C.U.R.E., Golisano Children’s Hospital and Camp Good Days – your choice at checkout!
Buy the coffee here!
Roc the Day - December 3
Stay tuned on Roc the Day’s website here: roctheday.org
We Want to Hear From You!
We are looking for volunteers for upcoming events in 2020!
If you are interested, please contact Adella at Adella.ivison@curekidscancer.com
Join Our Team!
We are currently looking for interns for Summer 2020!!
If you are interested, please email staff@curekidscancer.com
Tell Us Your Story
Has C.U.R.E. helped you? We would love to hear stories about how C.U.R.E. has helped you and your family. These stories will be shared with grantors, donors, on our website and social media. We want the community to know their contributions are making a difference! Submissions can be sent to staff@curekidscancer.com
New Programs?
What programming would you like to see at C.U.R.E.? We are working on developing more Parents’ Night Out events (where would you like us to set one up??) as well as joint programming with other local organizations. What would you like to see us work on? Please send suggestions to staff@curekidscancer.com
New Young Professionals Group
Email Brittany Charles in you are interested in learning more about C.U.R.E.’s new Young Professional Group!
charlebc11@gmail.com
Bereavement Corner
Let Me Tell You Who I Am
By Angela Miller
I am still a person like you, with a life like yours, yet not. I am still a mother like you, yet not at all like you, all at the same time. I wish there was some way you could understand me, without becoming who I am now. Read the full passage.
Wish List Items Needed
We are so grateful to the community for all of the wonderful donations we receive throughout the year. We could not service all the families we do without this generous support. If you or a community group you belong to is looking for something to do for a charity, please consider donating items from C.U.R.E.’s wish list so that we can continue to provide for our families.
Items Needed:
A cure for childhood cancer, blood diseases and brain tumors!
- Gift cards for Wegmans, Tops, Wal-Mart, Target and gas cards
- Gift cards for McDonalds, Wendy’s, Taco Bell, Burger King and Arby’s
- Weighted blankets
- Essential oils
- Mini diffusers
- Heating pads
- Dry shampoo
- Paper towels and toilet paper
- Facial Cleansing Wipes
- Cases of water
- Items for teens or young adults
- Toys for kids under 3 years old
- Playing cards and card games
- Word searches, adult coloring books and crosswords
We ask that all items be new and recently purchased. Thank you!
Support
Are you looking for someone to help tutor your child?
Are you looking for someone to help tutor your child? C.U.R.E. Childhood Cancer Association works with Boost to provide supplementary tutoring for children with cancer and other chronic diseases, which may prevent normal educational development. The group of teachers at Boost Tutors, will not supplement the tutoring being provided by the school, but will act as a “boost” to a child by helping him/her better understand material being presented at the child’s grade level. The tutors use their teaching expertise to fill the gap left when traditional schooling is not possible. The group is currently in need of volunteer tutors, also. For more information please contact Adella Ivison, Program Coordinator for C.U.R.E. at 585-473-0180 or Adella.ivison@curekidscancer.com and she will make a referral.
Educational Consultant Services from C.U.R.E.
Do you have questions and concerns about your child’s schooling after diagnosis of cancer, brain tumor or blood disorder? C.U.R.E. can help. Kathryn Wissler, M. Ed is available for educational consultation with Pediatric Hematology Oncology Patients seen at Golisano Children’s Hospital at Strong. If you would like to speak with Kathy Wissler either in person or via phone, please contact Adella Ivison, C.U.R.E. Program Coordinator, at 585-473-0180, or Adella.ivison@curekidscancer.com and she will make a referral. This service is provided free for C.U.R.E. families.
Facebook Live
Kiersten Kunick and Michelle Magin, Parent Advocates, go live on Facebook.
They can answer any questions during this time, share upcoming news, provide support and connect parents with other parents.
Have a topic you’d like to hear about? Feel free to reach out to Kiersten at kiersten.kunick@curekidscancer.com or Michelle at Michelle.Magin@curekidscancer.com
They will do their best to answer your questions and address topics you’d like to hear about!
Brian Bisgrove Home of Courage
The Brian Bisgrove Home of Courage, located an hour away from Rochester, is a retreat and respite home for families with children who have life-altering conditions. Children and their families are invited into the beautiful, handsomely-appointed log cabin for a 3 or 4 day stay and rest and repose, all completely free of charge. At the Home, medically fragile children can experience a different kind of healing, one of the mind and the spirit. It’s a place to let go of anxiety and stress and focus on the family.
The website, with more detailed information on the Home and the application is: www.homeofcourage.com.