July 2022 Newsletter
C.U.R.E. is here.
From the day of diagnosis, throughout treatment and beyond:
The support doesn’t stop when the treatment stops.
And we are so thankful for our friends who make our support possible.
2nd Quarter Update
Your kindness makes a difference!
The support provided to our organization enables us to help our Families and make a difference in their lives. In addition to the support listed to the left, C.U.R.E. was able to provide additional significant support to Families:
- $3,000 in Funeral Expense Assistance
- $1,785 in Emergency Financial Assistance
- 2 Parents’ Night Out Events
- Survivors’ Day Picnic Celebration for over 70 Families
- Family Portrait Sessions for 17 Families
- Mother’s Day Surprises for 20 C.U.R.E. Moms
and much more.
Spotlight on: Madison
Meet our friend, Madison.
Madison is a kind, funny, and bright 6 year old. She loves to sing, dance, act, make potions, anything arts and crafts related, play with friends and go on vacations! Her favorite place is Great Wolf Lodge and her favorite activity is swimming.
Madison was diagnosed with AML Leukemia and her treatment is 5 months inpatient at Golisano Children’s Hospital before being able to switch to the outpatient clinic. She hopes to break out of 7N by the end of July so she can go on all of her vacations she has missed out on during her treatment. She can’t wait to get to Bounce Hopper and Strong Museum of Play, too!
Madison’s favorite thing about the hospital is that she has her own gift shop!
July Parents’ Night Out
On Wednesday, July 13, 2022 from 4-5:30 pm, enjoy an authentic Erie Canal experience aboard the Sam Patch tour boat located at 12 Schoen Place in Pittsford. This trip will be relaxing, educational, and give those attending a chance to socialize and enjoy some time on the water. Also, an opportunity to meet the new Program Coordinator, Carol Austin, if you have not had the chance to yet. Please call Carol at 585-473-0180 or email Carol.Austin@curekidscancer.com to reserve your spot. Anchors aweigh!
Rochester Red Wings Cancer Survivor Night Tickets
We have a limited number of tickets for the July 29th, Rochester Red Wings game. Please call or email Carol to reserve your tickets. These are first come, first served and we respectfully request only immediate members of the family household for this special night due to our limited amount of tickets. Watch for an update on how to pick up your tickets. “Play ball!”
An Evening with the RNY FC Soccer Team
The RNY FC soccer team will play against FC Cincinnati 2 on Friday, July 22, 2022 at 6:00 pm at Monroe Community College. The team has generously offered to fundraise for C.U.R.E. that night and shared a limited number of tickets with us for our families. The first 22 C.U.R.E. kids to sign up will be able to go onto the field with the team at the start of the game! Call or email Carol to sign up and let’s cheer the RNY FC on!
Family Fun Day @ Creative Themes
Join C.U.R.E., Catching Dreams and Creative Themes for a day of family fun on Sunday, August 7, 2022 at 325 Eaglehead Road in East Rochester from 11:30-2:30. There will be pizza, drinks, fun, and games for the whole family. Enjoy a few hours of fishing, kayaking, and all around fun at the Creative Themes site. We have enough room for 25 families to include immediate household members only. Sign up today with Carol via email or phone. A fun day of play for everyone!
To learn more about Creative Themes, visit their website: https://cthemes.net/
Catching Dreams
Catching Dreams Charters, Inc. hosts private fishing charters near Buffalo on Lake Erie or the Niagara River for pediatric oncology or hematology children.
We have connected with Ned, the Founder of this organization, and would love to connect our C.U.R.E. Kids to Ned and schedule some fishing charters! Charters are scheduled for during the week from mid-May through Labor Day and leave from the Buffalo Harbor or near the Niagara River.
Please reach out to Carol Austin if you are interested in a private fishing charter.
Any Teens with Sickle Cell Interested…
Dr. Noronha is trying to gauge interest from local teens with Sickle Cell Disease around having Zoom Meet Ups this summer. If you (or your child) is 13 years old - 17 years old and interested, please contact Dr. Noronha.
Donate Blood or Platelets!
Many of our children depend on blood transfusions and blood products in the course of their treatment. Our children are in need of blood products and you can help! Please consider donating blood if you are well enough to.
YOU can help C.U.R.E. for FREE
1) Follow us on social media:
Facebook: facebook.com/curekidscancerrochester
Instagram: @curekidscancer
Twitter: @curekidscancer_
(2) Write a review about C.U.R.E. on our Facebook Page or on Google.
(3) Write a blog that can be shared on our website.
(4) Contact our Parent Advocate Michelle about doing a Facebook Live or Instagram Takeover.
(5) “Like”, Share or Comment on our social media posts.
Conquer Cancer in Kids:
make childhood cancer research a priority:
UPDATE: THE PETITION IS JUST SHY OF BEING ONE OF THE MOST SIGNED PETITIONS ON CHANGE.ORG. THE GOAL IS 15,000 SIGNATURES AND AS OF 6/20/2022, THERE ARE 14,730 SIGNATURES!
We invite our families and supporters to join CNN’s Rene Marsh as she advocates to make childhood cancer research a priority! Sadly, Rene lost her two year old son, Blake, to brain cancer in April 2021. She is now working with CNN and childhood cancer awareness advocates to make a difference!
To review and sign the petition, click the button below.
Petition to the Biden Administration to increase funding for childhood cancer research. This effort was started through awareness from The Ellen Show.
77,892 signatures of 150,000 wanted (as of 6/20/2022)
Petition to increase funding of Childhood Cancer Research funds from the National Institute of Health from 4% to 8%.
124,890 signatures of 150,000 wanted (as of 6/20/2022)
GRYT Health connects patients and caregivers to others with shared experience and to information relevant to their journey.
Through the GRYT app, we’ve created a platform for people affected by cancer to connect to others with similar experiences, and to tailored information that helps our users become more aware of options specific to their needs or diagnosis – empowering them to make choices that are right for them.
Our community of patients, survivors, medical professionals, researchers and advocates across all 50 states in the U.S. and in more than 100 countries worldwide have participated in almost 1,000,000 interactions to date, inspiring people to live according to their own standards.
Trust from our community is paramount to our success and something we take very seriously. We never share any of our users’ information without their explicit permission. Unlike other apps, GRYT is the first social community that is funded, built, and run by patients and caregivers where users communicate anonymously in real-time and each person is 100% in charge of what happens with their data.
Make new friends…
We are so grateful for our new friends from Girl Scout Troop 60492! They worked with a fellow Girl Scout, who has first-hand knowledge of what it’s like to be a kid with cancer, to create these Care Kits for Kids with Cancer. Congratulations on earning your Bronze Award, girls, and thank you for thinking of our Kiddos. We think they’re REALLY going to love the Squishmallows!
Eastside Little League Hit a Home Run
with their Hot Dog Day in memory of Amanda Conrow. Held for several years, the crew at Eastside Little League works to have hot dogs donated by Zweigles to raise money for C.U.R.E. This year, they raised $1,602! We are so humbled to be a part of honoring Amanda’s memory. Our community lost Amanda in February 2015. What an honor it is to be included in remembering such a brave little girl. Thank you.
Thank you, Julianne’s Journey
Julianne’s Journey, The Dawgs and Buntsy’s Neighborhood Food & Drink have been so good to our organization and our Families. On June 11th, they worked together to host a concert at Buntsy’s to raise money for C.U.R.E. Thank you for thinking of our families and raising $1,200!! You rock!
Thank you, Captain Ned from Catching Dreams
Thank you, CURE Bears for Hope and Love
A HUGE thank you to our Friends at CURE Bears for Hope and Love for providing Squishmallows to our kiddos at our annual Survivors’ Day Celebration. They were SO excited about receiving these. We appreciate you always thinking of our Children.
Thank you, Mya!
Mya Hayes planned a Girls Basketball Team vs. Faculty/Staff game to benefit C.U.R.E. The Hope Hall Community was so wonderful in generating donations for C.U.R.E. and our Families. Inspired by a past C.U.R.E. Kid, Mya wanted to make a difference to other C.U.R.E. Families. Thank you so much for thinking of us!
Please consider honoring our Little Angels through tending to our Julie Roberts Children’s Memorial Garden. Named in memory of Julie Roberts, our garden memorializes our Friends we have lost too soon. A brick walkway in front of our building is adorned with the names of our angels.
Tending to the garden includes weeding, pruning and watering. Sign up for a week below. You can come any day or time during that week.
September is Awareness Month
We are hoping to make Awareness Month even BIGGER this year and could use some help! With fun things like
- Flocking Yards with Golden Flamingos
- Liquid Gold Mac & Cheese Challenge
- Proclamations from local towns and the City
- Partners donating a portion of proceeds to C.U.R.E.
- (Insert YOUR creative idea here!)
We have a LOT going on.
Want to help?
Email Holly!
Recipe for a C.U.R.E. Sunday Brunch
We are looking for volunteer committee members to transport us to WONDERLAND! Want to be a part of making our Brunch special? We are in need of:
- Live Auction Volunteers
- Silent Auction Volunteers
- Decorating Volunteers
- Promotion Volunteers
Any of that sound good to you? Great! Email Holly!
Join our Board of Directors!
We have some Board positions opening in the very near future! Interested in applying?
The Board meets monthly for 1.5 - 2 hours (Currently the third Wednesday evening of the month)
Board members must attend two of the three main fundraisers (5k & Fun Walk, Golf Tournament, Brunch)
Board members are on at least one sub-committee
Board members make a monetary donation for the Board sponsored Live Auction package for the Brunch
Applications can be emailed to:
cureboardapplications@gmail.com
Join C.U.R.E.’s YPC!
We are re-energizing our YPC (Young Professional Committee)! If you are a Young Professional looking for an opportunity to get involved with C.U.R.E., meet some awesome volunteers and help our families, we would LOVE to have you!
Please reach out to Board Member, Brian Wainwright, to start connecting!
Click me to email!
We want to connect!
If you served on the Board of Directors for C.U.R.E. Childhood Cancer Association, we would love to stay connected! Please email Holly Dutcher to connect!
holly.dutcher@curekidscancer.com
Girl Scout Patch..
Friends of Faith Pruden offered the opportunity for Girl Scout troops to spread awareness for childhood cancer and offered this badge to the Girl Scout troops.
This will be repeated again this year and there will be patches available.
Email to request information about the Girl Scout patch:
GoldRibbonAwareness@gmail.com
Link to their Facebook page:
https://facebook.com/FaithPrudenFoundation/
We are SOLD OUT!
Thank you so much to our Friends who registered to play! We can’t wait for a beautiful day to remember Patrick and all the Lil Fighters who have battled or are battling!
We are hoping for some raffle basket donations for our 7th Annual Patrick Carr Memorial Golf Tournament!
Please drop off to our office by July 11th, but call first to ensure we have staff here to accept the donations (585-473-0180). Our office is located at 200 Westfall Road, Rochester, NY 14620
Christmas in July is back!
Santa is on vacation, so we need your help!
We are celebrating Christmas in July once again.
We have updated our Amazon Wishlists to reflect what we are in need of currently:
Under $20: https://a.co/hlW4hCO
$20 - 50: https://a.co/eHiQcV2
$50+: https://a.co/bVDujCy
Stop by the office July 20th, 21st, 22nd, 25th or 26th for a treat for yourself, too!
Childhood Cancer Awareness Month T-Shirts!
We have partnered with Bonfire for Childhood Cancer Awareness Month! The back is customizable: add your Pediatric Cancer Warrior’s name! Campaigns can start ASAP and your crew can order your gear now to have in hand in September. Campaigns will end by 9/15/2022. A portion of the sale from each shirt will be donated to C.U.R.E. to further our mission of supporting local families facing BIG battles!
Childhood Cancer Awareness Month Lawn Signs
Every Penny Matters.
Do you want to join forces with C.U.R.E. and participate in our Annual Penny Drive? We make it easy! We can decorate and deliver jugs for your to facilitate your collections. We will also pick up your donations. No change rolling or counting required! Contact our office if your school or business would like to participate!
It makes cents.
It’s back!
Race With Grace 3.0 is back and better than ever this year!
NEW LOCATION: Lakeshore Community Church (3651 Latta Road, 14612)
The entry fee includes a long-sleeved tech shirt. (The 1/4 Zip up can be upgraded at check out instead of the L/S T-Shirt) Sizes are guaranteed if you register prior to November 1, 2022. There will be plenty of food and refreshments, complete computerized race results available online, and race photos. Awards will be given to top male and female finishers in the Open, Masters (40+), Veterans (50+), and Seniors (60+) categories, as well as the 1st, 2nd, and 3rd place finisher in each age group
C.U.R.E. Partners:
New Partner Alert:
CR Bottle Return is our newest partner! Bring your bottles to CR Bottle Return at 2750 Dewey Ave and tell them it’s for account 4052100 (C.U.R.E.) and your deposit will be donated to us! We will be given six cents for every bottle donated!
We are so thankful for this partnership! Check them out!
Glimpse of Gold's purpose is to encourage people to take the next step, even if childhood cancer is not directly affecting you or your family. Glimpse of Gold hopes to educate others on different ways to help, while encouraging people to think about the topic a little longer than they normally would.
Glimpse of Gold is so excited to be collaborating with C.U.R.E for the next few months! This collaboration involves providing monetary donations directly to C.U.R.E. At the minimum of a $20 donation to C.U.R.E., an embroidered beanie with the slogan “Only Sunshine Ahead” will be given to a child currently going through treatment at Golisano Children's Hospital (For example, if you donate $40 two beanies will be sent to two different children in bright and beautiful packaging to bring some light to their dark times). In return, the first 100 people that donate will receive a silicone wristband with the same slogan as the children’s beanies, stickers, and a thank you note! Please note that all shipping will be coming directly from Sydney Lewandowski and not C.U.R.E.
If you have any questions please contact Sydney Lewandowski. You can reach her on both Instagram and Facebook @glimpseofgold.roc or email her at glimpseofgold.roc@gmail.com
You can now return your cans and bottles to Alpco Recycling and Bottle & Can Retrieval Centers! Let them know you’d like to support “C.U.R.E. Childhood Cancer Association” and a donation will be made to us!
Alpco Recycling is located at:
846 Macedon Center Road, Macedon, NY 14502
Bottle & Can Retrieval Centers located at:
509 Spencerport Rd, Rochester
2199 East Henrietta Rd, Rochester
2374 Chili Ave, Rochester
More ways to help:
Become a C.U.R.E. Ambassador!
The Support Doesn’t Stop When Treatment Stops…
Because of YOU and your kindness.
Support our mission year-round by becoming a C.U.R.E. Ambassador! A C.U.R.E. Ambassador is a donor who commits to our mission through a monthly donation of his/her choosing. Whatever level you are comfortable with makes a difference!
Click here to learn more.
C.U.R.E. has joined the PayPal Giving Fund. Please consider adding us to your account to Shop, Donate and Raise Awareness for our families.
PayPal Giving Fund expands our fundraising reach through direct integration with PayPal, eBay and GoFundMe.
Want to help make a difference while you shop in the Amazon app, at no extra cost to you?
Simply follow the instructions below to select "C.U.R.E. Childhood Cancer Association" as your charity and activate AmazonSmile in the app. They'll donate a portion of your eligible mobile app purchases to us.
How it works:
1. Open the Amazon app on your phone
2. Select the main menu (=) & tap on "AmazonSmile" within Programs & Features
3. Select "C.U.R.E. Childhood Cancer Association" as your charity
4. Follow the on-screen instructions to activate AmazonSmile in the mobile app
Bereavement Group
Bereavement Group occurs on the first Wednesday of every month.
We will be hosting the Bereavement Meeting at the C.U.R.E. office at 7 PM. Please bring a lawn chair so we can enjoy the weather outside!
For more information, please reach out to Michelle Magin.
michelle.magin@curekidscancer.com
We are so grateful to the community for all of the wonderful donations we receive throughout the year. We could not service all the families we do without this generous support. If you or a community group you belong to is looking for something to do for a charity, please consider donating items from C.U.R.E.’s wish list so that we can continue to provide for our families:
A cure for childhood cancer, blood diseases and brain tumors!
- Buffalo Bills items (hats, gloves, socks, etc.) for teen gifts
- Colored pencils/art pencils
- Universal phone chargers with long cords
- Reliable thermometers
- Gift cards for Wegmans, Tops, Wal-Mart, Target and gas cards
- Gift cards for GrubHub, McDonalds, Wendy’s, Burger King, Moe’s, Chipotle, Dunkin Donuts and Starbucks
- Crafts for young adults and children
- Items for teens or young adults
- Toys (Please look at our Amazon Wish Lists:
Under $20: https://a.co/hlW4hCO
$20 - 50: https://a.co/eHiQcV2
$50+: https://a.co/bVDujCy)
We ask that all items be new and recently purchased. Thank you!
Get your C.U.R.E. Gear
Rock C.U.R.E. Elite Sport Socks!
These super comfortable and supportive sport socks are HERE! What a great way to show support for C.U.R.E. and small businesses, they are made in the USA! Rock them while you are working from home or out exercising. Sandal season is over, rock these cozy socks today!