June 2021 Newsletter
C.U.R.E. has been here.
From the day of diagnosis, throughout treatment and beyond:
The support doesn’t stop when the treatment stops.
And we are so thankful for our friends who make our support possible.
Spotlight on: Armyni
Meet our friend, Armyni!
Armyni was diagnosed with A.L.L. last year.
Three facts about our friend:
(1) She is loving and caring.
(2) She loves to help clean up!
(3) Her smile can brighten a room
When she is admitted at the hospital, she likes to paint, participate in Music Therapy and have tea parties. Armyni LOVES playing with dolls! She is a very charismatic little girl.
We have two part-time positions available:
Parent Advocate (Monday through Wednesday) at Golisano Children’s Hospital. The person in this position must be the parent of a long-term survivor (two years or more out of treatment). This person meets with families daily at the hospital, provides them with resources and connects them with other families.
Administrative Assistant to perform various administrative tasks in the office including answering phones, helping with donor acknowledgment letters and maintaining and monitoring office supplies. This could be a great option for a college student!
Please reach out to Holly Dutcher for more info.
Click me to email.
Dads’ Night Out: Big Oak Driving Range
Click here to RSVP.
Family Mini Photo Sessions
Our friend at That’s Darling Portraits is offering twenty minute photo sessions to our C.U.R.E. Families during the month of June. The sessions will give immediate C.U.R.E. Families (no relatives) 5-10 digital photos to print or use as you please. The photo sessions will occur at Highland Park.
The following time slots are open:
Thursday, June 10th
4 PM, 5:30 PM, 6:30 PM
Saturday, June 12th
5:30 PM, 6:30 PM, 7:30 PM
Thursday, June 17th:
4:30 PM, 7:30 PM
Saturday, June 19th:
4 PM, 5:30 PM, 6 PM, 6:30 PM, 7 PM, 7:30 PM, 8 PM
C.U.R.E. will be covering the cost of the session.
To sign up for a time, please email Laurie and include the C.U.R.E. Child’s name, your cell phone number, your 1st and 2nd choices for session time and number of people in the shoot by clicking HERE.
July Parents’ Night Out
We hope you’ll join us at Blue Barn Cidery as we partner, once again, with the talented Tonja from Lucky Heart Designs! She’s created a special awareness tray for our parents to display in their homes during September (Childhood Cancer & Sickle Cell Awareness Month) - or all year long, if you’d like!
RSVP is required to attend!
Please email Laurie by July 1st to reserve your spot!
Click here to email.
We’ve got you covered!
C.U.R.E. has been gifted filtered and unfiltered cloth masks as well as surgical masks! We have child sized cloth masks and adult sized surgical and cloth. If our families are in need of masks, please contact us to arrange getting you some! Send us an email if you are in need: Click me to email.
Our friends at Golisano Children’s Hospital sent us this great Toolkit to help parents explain mask wearing to their kiddos. Check it out here.
Donate Blood!
Many of our children depend on blood transfusions and blood products in the course of their treatment. With the recent pandemic, blood drives have been halted. Our children are still in need of blood products. Please consider donating blood if you are well enough to. Visit redcrossblood.org to set up an appointment time. They are adhering to social distancing guidelines to fulfill the need.
YOU can help C.U.R.E. for FREE
1) Follow us on social media:
Facebook page: facebook.com/curekidscancerrochester
Instagram: @curekidscancer
Twitter: @curekidscancer_
(2) Write a review about C.U.R.E. on our Facebook Page or on Google
(3) Write a blog that can be shared on our website.
(4) Contact our Parent Advocate about doing a Facebook Live or Instagram Takeover
(5) “Like”, Share or comment on our posts on social media!
Imaginary Friend Society:
A cancer diagnosis is scary for anyone, but for a child it can be even scarier. They’re bombarded with terminology and procedures that are intimidating and unfamiliar. Things like radiation, hair loss, blood transfusions, chemotherapy, and surgery. Just to name a few.
That’s where the Imaginary Friend Society comes in: a cast of characters inspired by the imaginations of kids themselves. Through a series of 20 animated short films, our imaginary friends explain a wide range of complicated cancer topics in a way that kids can understand. Because the more they understand about their treatment, the less scary it will be. To learn more, click here.
GRYT Health connects patients and caregivers to others with shared experience and to information relevant to their journey.
Through the GRYT app, we’ve created a platform for people affected by cancer to connect to others with similar experiences, and to tailored information that helps our users become more aware of options specific to their needs or diagnosis – empowering them to make choices that are right for them.
Our community of patients, survivors, medical professionals, researchers and advocates across all 50 states in the U.S. and in more than 100 countries worldwide have participated in almost 1,000,000 interactions to date, inspiring people to live according to their own standards.
Trust from our community is paramount to our success and something we take very seriously. We never share any of our users’ information without their explicit permission. Unlike other apps, GRYT is the first social community that is funded, built, and run by patients and caregivers where users communicate anonymously in real-time and each person is 100% in charge of what happens with their data.
For Fathers of Pediatric Oncology Patients:
This is a personal account of a father's struggle to try and save his son, Max, who suffered from two cancers. The author expresses his hopes, fears, and emotions during the illness, and the growing love that developed between them. He describes how it feels to be a parent of a cancer-stricken child and demonstrates the amazing endurance and courage of children undergoing cancer treatment.
Free to read as a digital download if you subscribe to Kindle Unlimited -
– Click here to learn more
Thank you to Friends of Jason for hosting another great Chicken BBQ to raise money for C.U.R.E. and the Ronald McDonald House Charities of Rochester! They put together an incredible event every year, including a delicious chicken BBQ (the homemade sides are just as good as the chicken!), gift basket raffle and the most delicious homemade chocolate candy you’ve ever had! thank you, also, to chris for this awesome collection of toys and gifts for our kids! We love going to Hornell every year for this event and are sincerely grateful for the support Anne, James, Chris and the whole Friends of Jason Crew put forth to honor Jason’s memory and advocate for our families.
Thank you to all who participated and partnered with us for the12th Annual 5K Run and Fun Walk Presented by Cornerstone Wealth Management. If you were unable to pick up your race package please contact Jonathan to make arrangements. (Click Here)
We would LOVE your help!
We are looking for help with raising awareness in September and could use some help and new ideas!
Some areas of involvement are:
- Contacting local towns and villages to recognize Awareness Month through Proclamations and/or gold ribbons around town
- Helping to “Flock” people’s yards with golden flamingos
- Promoting businesses to light up their exteriors for the month
- Promoting the “Liquid Gold Challenge”
Interested in helping? Email Holly. (Click here to email)
Interested in helping plan this year’s
Recipe for a C.U.R.E.
Sunday Brunch?
Please contact Jonathan if you would like to help in the planning and execution of the year’s largest fundraiser.
We are looking for volunteers who are interested in theming/decorating, the dining room experience, live auction, and overall event logistics.
If you are interested (Click Here) to let Jonathan know!
Looking for Volunteers!
Our Julie Roberts Children’s Memorial Garden wouldn’t be as beautiful without the TLC from our wonderful volunteers! Sign up for a week to care for our garden this year!
Garden TLC involves weeding, trimming bushes/trees, pruning the garden and watering the garden.
Sign up here.
Join C.U.R.E.’s YPC!
We are re-energizing our YPC (Young Professional Committee)! If you are a Young Professional looking for an opportunity to get involved with C.U.R.E., meet some awesome volunteers and help our families, we would LOVE to have you!
Please reach out to Board Member, Brian Wainwright, to start connecting!
Click me to email!
We want to connect!
If you served on the Board of Directors for C.U.R.E. Childhood Cancer Association, we would love to stay connected! Please email Holly Dutcher to connect!
holly.dutcher@curekidscancer.com
TEE TIMES ARE FILLING UP!!
6th Annual Patrick Carr Memorial Golf Tournament
presented by Brighton Securities
Registration is open!
We hope you’ll join us
Monday, July 19th at Deerfield Country Club
Registration includes:
- 18 holes of golf with cart
- Deluxe lunch on the CenterPointe Balcony
- Voucher to return to play 18 holes again sometime within the next year
- Beverages on the course
(Click here! to register)
The Support Doesn’t Stop When Treatment Stops…
Because of YOU and your kindness.
Support our mission year-round by becoming a C.U.R.E. Ambassador! A C.U.R.E. Ambassador is a donor who commits to our mission through a monthly donation of his/her choosing. Whatever level you are comfortable with makes a difference!
Click here to learn more.
Want to help make a difference while you shop in the Amazon app, at no extra cost to you?
Simply follow the instructions below to select "C.U.R.E. Childhood Cancer Association" as your charity and activate AmazonSmile in the app. They'll donate a portion of your eligible mobile app purchases to us.
How it works:
1. Open the Amazon app on your phone
2. Select the main menu (=) & tap on "AmazonSmile" within Programs & Features
3. Select "C.U.R.E. Childhood Cancer Association" as your charity
4. Follow the on-screen instructions to activate AmazonSmile in the mobile app
C.U.R.E. + Astral Power
We have partnered with Astral Power to give our C.U.R.E. supporters access to renewable energy! The solar energy comes from the solar farm on Washington Street in Ogden. Once you sign up, your utility will automatically credit your utility bill for being a member, saving you a guaranteed 10% of your utility costs per year.
Signing up is easy:
(1) Call Rylea (585) 402-9313
or
(2) go to: https://www.astralpower.com/#signup
”How Did You Hear About Us” Select “Customer Referral” and enter “CURE” in “Referred By”
Get your C.U.R.E. Gear
Rock C.U.R.E. Elite Sport Socks!
These super comfortable and supportive sport socks are HERE! What a great way to show support for C.U.R.E. and small businesses, they are made in the USA! Rock them while you are working from home or out exercising. Sandal season is over, rock these cozy socks today!
We are hoping for feedback from our Bereaved Parents Community.
Are there programs or services you would be interested in that C.U.R.E. may be able to offer to help support you and your family or to connect with other families?
Is there a safe, social activity you would like to participate in?
We would love some feedback and ideas.
This has been a particularly difficult and isolating year.
Please let us know if there is anything we can do to help.
Please send any messages and feedback to Holly Dutcher. Click me to email.
June Bereavement Group
The June Bereavement Meeting will be offered via Zoom from 7:00 - 8:30 PM. Michelle Magin, C.U.R.E.’s Parent Advocate, Liz & Paul Conrow and Debra Zalar (bereaved parents), will be leading this meeting. Please check your email for the Zoom link or contact the C.U.R.E. office to receive it (staff@curekidscancer.com).
We are so grateful to the community for all of the wonderful donations we receive throughout the year. We could not service all the families we do without this generous support. If you or a community group you belong to is looking for something to do for a charity, please consider donating items from C.U.R.E.’s wish list so that we can continue to provide for our families:
A cure for childhood cancer, blood diseases and brain tumors!
- Gift cards for Wegmans, Tops, Wal-Mart, Target and gas cards
- Gift cards for GrubHub, McDonalds, Wendy’s, Burger King, Moe’s, Chipotle, Dunkin Donuts and Starbucks
- Crafts for young adults and children
- Facial Cleansing Wipes and body wash
- Items for teens or young adults
- Fabric Markers
-Toys (Please look at our Amazon Wish Lists:
Under $20: https://a.co/hlW4hCO
$20 - 50: https://a.co/eHiQcV2
$50+: https://a.co/bVDujCy)
We ask that all items be new and recently purchased. Thank you!