September 2022 Newsletter
C.U.R.E. is here.
From the day of diagnosis, throughout treatment and beyond:
The support doesn’t stop when the treatment stops.
And we are so thankful for our Friends who make our support possible.
September is Awareness Month!
Did you know we have an ENTIRE page dedicated to Awareness Month? It will list all of the Proclamations, businesses going gold, Liquid Gold Challenge participants, ways to raise awareness and MORE!
Spotlight on: Kennedy
Meet our friend, Kennedy.
Kennedy is a beautiful, smart, and sassy little 2 year old girl. She has a family she is crazy about and loves to give hugs and kisses. Kennedy was diagnosed with a large Neuroblastoma that is invading her stomach and dangerously close to her spine. She is currently undergoing treatment with the hope her tumor shrinks and can eventually have it surgically removed.
Her strength, positive attitude and tenacity could make anyone smile and feel inspired!
Sending love and congratulations to Maya and Ari who, along with their Families, came and rang the End of Chemo Bell in our office recently. Maya rang the End of Chemo Bell on August 8th. Ari rang the End of Chemo Bell on August 24th. They both added their Handprints on the “Handprints of Hope” wall we have here at the office and we treated them to some of their favorites: Cheetos and Chocolate Chip Cookies!
Morton Family Fun Day is almost here! You should see your invitation in the mail soon. Join us on Saturday, September 17, rain or shine! Free for C.U.R.E. families (with their immediate household members)!
Lunch from 12 -1:00 PM.
Activities from 1 - 4:00 PM (including wagon rides, apple picking and pumpkin selecting, crafts, games and pony rides at the Morton’s Fireman’s Field)
Call Carol at 585-473-0180 or click the link below.
Thank you to the Morton Baptist Church for hosting this event for our Families for OVER 30 YEARS!!
September Parents’ Night Out
On Friday, September 23, 2022 from 5:30 - 8:00 PM, come and enjoy a trip around the city with Rochester Pedal Tours. A fun evening shared with other C.U.R.E. Parents and an opportunity to see the downtown buildings lit up Gold for September. Let’s gear up for a “wheelie” great adventure around the City! Amazing sites to see such as the Sibley Building, Liberty Pole, First Savings Bank of Rochester, St. Joseph’s, Wall Therapy and so much more. Participants must wear comfortable shoes and clothing. Parking will be available at 40 Marshall Street and then walk 7 doors down to Marshall Street Bar & Grill. Light snacks, water and soda will be provided by C.U.R.E. Please call Carol at 585-473-0180 or click below to reserve your spot.
It’s Spooky Szn!
Be ready to have a spooktacular evening for Parents’ Night Out at VerHulst Haunted Hayride, located at 5161 Ridge Road in Spencerport. Join us on Friday, October 14th at 7:30 pm. This event is for Parents or Caregivers of C.U.R.E. Children.
Call Carol at 473-0180 or click the link to sign up!
Taking you to new heights!
Parents’ Day Out at Bristol Mountain Aerial Adventures will take you to new heights for a Fall afternoon. An exciting afternoon overlooking Bristol and adventures that you won’t believe. C.U.R.E. Parents and Caregivers can call the office at 585-473-0180 or Click Here to Sign Up
All Aboard!
Save the date for our Annual Holiday Celebration: Wednesday, December 7th
”Why, to the the North Pole, of course!”
We will be offering time slots for our Holiday Celebration, similar to last year, and look forward to celebrating with our Families!
Virtual Meeting with the FDA
Board Member and Childhood Cancer Survivor, Jacob Adams, will be a panelist in this discussion!
September 15, 2022 from 10 AM - 3 PM
Resources:
Childhood Cancer Survivor Scholarship and Employment Resources:
Children's Cancer Cause is assisting childhood cancer patients, survivors and families by centralizing most national resources that provide scholarships for survivors of childhood cancer or those with particular effects. The site also has resources and advice relating to employment and applying for these scholarships.
Some opportunities require commitment to a childhood cancer advocacy project while in college, while others make you eligible for you just being you. But you do need to apply! Be sure to read the instructions and qualifications very carefully. Apply in plenty of time to get feedback from family, guidance counselors and others. Board Member, Jacob Adams, would be happy to help if given at least two weeks’ notice. Please contact the office for his e-mail address.
Catching Dreams
Catching Dreams Charters, Inc. hosts private fishing charters near Buffalo on Lake Erie or the Niagara River for pediatric oncology or hematology children.
We have connected with Captain Ned, the Founder of this organization, and would love to connect our C.U.R.E. Kids to Ned and schedule some fishing charters! Charters are scheduled for during the week from mid-May through Labor Day and leave from the Buffalo Harbor or near the Niagara River.
Please reach out to Carol Austin if you are interested in a private fishing charter.
Any Teens with Sickle Cell Interested…
Dr. Noronha is trying to gauge interest from local teens with Sickle Cell Disease around having Zoom Meet Ups this summer. If you (or your child) is 13 years old - 17 years old and interested, please contact Dr. Noronha.
Donate Blood or Platelets!
Many of our children depend on blood transfusions and blood products in the course of their treatment. Our children are in need of blood products and you can help! Please consider donating blood if you are well enough to.
YOU can help C.U.R.E. for FREE
Follow us on social media:
Facebook: facebook.com/curekidscancerrochester
Instagram: @curekidscancer
Twitter: @curekidscancer_Write a review about C.U.R.E. on our Facebook Page or on Google.
Write a blog that can be shared on our website.
Contact our Parent Advocate Michelle about doing a Facebook Live or Instagram Takeover.
“Like”, Share or Comment on our social media posts.
Conquer Cancer in Kids:
make childhood cancer research a priority:
UPDATE: THE PETITION IS JUST SHY OF BEING ONE OF THE MOST SIGNED PETITIONS ON CHANGE.ORG. THE GOAL IS 15,000 SIGNATURES AND AS OF 9/1/2022, THERE ARE 14,792 SIGNATURES!
We invite our families and supporters to join CNN’s Rene Marsh as she advocates to make childhood cancer research a priority! Sadly, Rene lost her two year old son, Blake, to brain cancer in April 2021. She is now working with CNN and childhood cancer awareness advocates to make a difference!
To review and sign the petition, click the button below.
Petition to the Biden Administration to increase funding for childhood cancer research. This effort was started through awareness from The Ellen Show.
78,709 signatures of 150,000 wanted (as of 9/1/2022)
Petition to increase funding of Childhood Cancer Research funds from the National Institute of Health from 4% to 8%.
127,514 signatures of 150,000 wanted (as of 9/1/2022)
GRYT Health connects patients and caregivers to others with shared experience and to information relevant to their journey.
Through the GRYT app, we’ve created a platform for people affected by cancer to connect to others with similar experiences, and to tailored information that helps our users become more aware of options specific to their needs or diagnosis – empowering them to make choices that are right for them.
Our community of patients, survivors, medical professionals, researchers and advocates across all 50 states in the U.S. and in more than 100 countries worldwide have participated in almost 1,000,000 interactions to date, inspiring people to live according to their own standards.
Trust from our community is paramount to our success and something we take very seriously. We never share any of our users’ information without their explicit permission. Unlike other apps, GRYT is the first social community that is funded, built, and run by patients and caregivers where users communicate anonymously in real-time and each person is 100% in charge of what happens with their data.
CURE Bears for Hope and Love & Friends…
Thank you so much to CURE Bears for Hope and Love & Friends for your kindness in donating backpacks and school supplies for our C.U.R.E. kids and their siblings. We appreciate all that you do for us!
Creative Themes Day Camp & Catching Dreams…
Thank you Creative Themes Day Camp and Catching Dreams for a wonderful afternoon of fishing, kayaking, juggling, arts and crafts and so much more! What a wonderful day for our C.U.R.E. families. There were smiles everywhere! Each child also left with a new fishing pole and tackle box, compliments of our Friend Captain Ned!
Mac Daddy Award Winners:
A huge thank you to our Friends from The Gate House Cafe. They were our Liquid Gold for C.U.R.E. Challenge winners for 2019 and 2021. They were unable to participate in the Challenge this year, but made a very generous donation to our organization in support of our mission. We are truly humbled by their support and appreciate their willingness to let someone else try for the 2022 Title of “Mac Daddy”.
Thank you, Sasha!
We are so grateful for our Friend Sasha. While visiting with his grandparents this past month, they made a point of stopping by the office so he could donate money from his piggy bank. He said he wanted to help sick kids. Well Sasha, you not only helped sick kids but melted our hearts. We are so grateful for your kindness and thoughtfulness. Thank you for keeping our children in your heart.
You shine bright, RDI!
A tremendous THANK YOU for continuing to be so kind to our Families. Your belief in our mission drives us to continue providing meaningful support to our Families. Thank you for believing in us and the work we do!
Hang Tight, Friends!
We WILL be recruiting volunteers to help us at the Recipe for a C.U.R.E. Sunday Brunch for during the event and to help in the office afterwards (!!!), but not quite yet. Keep your eyes peeled for an email about that!
Don’t get our emails? Check your Spam/Junk folder (we had an issue with our emails where our beautifully crafted masterpieces were MISTAKENLY identified as junk mail by some servers). Be sure to sign up for our emails if you don’t receive them!
Please consider honoring our Little Angels through tending to our Julie Roberts Children’s Memorial Garden. Named in memory of Julie Roberts, our garden memorializes our Friends we have lost too soon. A brick walkway in front of our building is adorned with the names of our angels.
Tending to the garden includes weeding, pruning and watering. Sign up for a week below. You can come any day or time during that week.
Join our Board of Directors!
We have some Board positions opening in the very near future! Interested in applying?
The Board meets monthly for 1.5 - 2 hours (Currently the third Wednesday evening of the month from 5:30 - 7:30)
Board members must attend two of the three main fundraisers (5k & Fun Walk, Golf Tournament, Brunch)
Board members are on at least one sub-committee
Board members make a monetary donation for the Board sponsored Live Auction package for the Brunch
Applications can be emailed to:
cureboardapplications@gmail.com
We want to connect!
If you served on the Board of Directors for C.U.R.E. Childhood Cancer Association, we would love to stay connected! Please email Holly Dutcher to connect!
holly.dutcher@curekidscancer.com
Girl Scout Patch..
Friends of Faith Pruden offered the opportunity for Girl Scout troops to spread awareness for childhood cancer and offered this badge to the Girl Scout troops.
This will be repeated again this year and there will be patches available.
Email to request information about the Girl Scout patch:
GoldRibbonAwareness@gmail.com
Link to their Facebook page:
https://facebook.com/FaithPrudenFoundation/
Liquid Gold for C.U.R.E. is back!
We are so excited to Get Cheesey again this year to raise awareness of childhood cancer! Please check out these incredible restaurants during September and order their mac and cheese. Some have created custom dishes while others are donating based on the number of times their tried and true classic is ordered. Since mac and cheese is gold in color and SUPER kid-friendly, we thought it the BEST way to help raise awareness and support local establishments.
Please be sure to post a photo on social media if you check out the mac and cheese. Tag C.U.R.E. and use #cureawareness2022 and encourage all your friends to get cheesey with us for the kids!
Childhood Cancer Awareness Month T-Shirts!
We have partnered with Bonfire for Childhood Cancer Awareness Month! The back is customizable: add your Pediatric Cancer Warrior’s name! Campaigns can start ASAP and your crew can order your gear now to have in hand in September. Campaigns will end by 9/15/2022. A portion of the sale from each shirt will be donated to C.U.R.E. to further our mission of supporting local families facing BIG battles!
Candles
Decals
Blankets
Bracelets
Epicure Food
Usborne Books
Soul Ease Massage
Running
Baskets Wanted!
We are still in need of some great Auction baskets. Some ideas include spirit-related baskets (think margaritas, bloody marys, moscow mules and more). We also could use some date night baskets, too! We have SO many kid-related baskets that are sure to excite you! We have received quite a few pet themed baskets at this point, so we should be good there. Supporting local establishments is HUGE! If you are assembling a basket, we humbly ask you to support the incredible businesses who continue to give back to our community and make it so great.
Don’t Be Late!
Don’t Be Late for this VERY important date!
Our Recipe for a C.U.R.E. Sunday Brunch is BACK and we are thrilled! Tickets are L-I-M-I-T-E-D, so if you want to join us in person at Arbor at the Port, you will want to JUMP on ticket purchasing as soon as possible.
Cat Kwiecien has been working tirelessly on the Silent Auction portion of the event. GREAT NEWS: it will be available to EVERYONE (whether you are attending the event or not) via online auction again this year! Stay tuned for how to start bidding (which starts on Thursday, September 29th and ends on October 2nd).
We have been working hard on some REALLY great Live Auction packages as well. To check out all things Recipe for a C.U.R.E. Sunday Brunch related (including the incredible menu our talented Chef Friends have dreamed up), check out our website.
Glass Slipper Gala
Presented by the Women’s Council of Realtors
Enjoy an evening you will never forget as our Real Estate Industry Professionals strut the runway in their best Heels. Hors d'ourves and 1 drink ticket is included in price of admission. Tickets are $65/each. Valet parking available for $5
Calendars of the models will be for sale for $20 to both attendees and those unable to join. All proceeds from the calendar sales will be donated to C.U.R.E.
Every Penny Matters.
Do you want to join forces with C.U.R.E. and participate in our Annual Penny Drive? We make it easy! We can decorate and deliver jugs for your to facilitate your collections. We will also pick up your donations. No change rolling or counting required! Contact our office if your school or business would like to participate!
It makes cents.
It’s back!
Race With Grace 3.0 is back and better than ever this year!
NEW LOCATION: Lakeshore Community Church (3651 Latta Road, 14612)
The entry fee includes a long-sleeved tech shirt. (The 1/4 Zip up can be upgraded at check out instead of the L/S T-Shirt) Sizes are guaranteed if you register prior to November 1, 2022. There will be plenty of food and refreshments, complete computerized race results available online, and race photos. Awards will be given to top male and female finishers in the Open, Masters (40+), Veterans (50+), and Seniors (60+) categories, as well as the 1st, 2nd, and 3rd place finisher in each age group
C.U.R.E. Partners:
You can now return your cans and bottles to Alpco Recycling and Bottle & Can Retrieval Centers! Let them know you’d like to support “C.U.R.E. Childhood Cancer Association” and a donation will be made to us!
Alpco Recycling is located at:
846 Macedon Center Road, Macedon, NY 14502
Bottle & Can Retrieval Centers located at:
509 Spencerport Rd, Rochester
2199 East Henrietta Rd, Rochester
2374 Chili Ave, Rochester
More ways to help:
Become a C.U.R.E. Ambassador!
We hope to get to 25 Ambassadors by the end of September! We are currently at 21!
The Support Doesn’t Stop When Treatment Stops…
Because of YOU and your kindness.
Support our mission year-round by becoming a C.U.R.E. Ambassador! A C.U.R.E. Ambassador is a donor who commits to our mission through a monthly donation of his/her choosing. Whatever level you are comfortable with makes a difference!
Click here to learn more.
C.U.R.E. has joined the PayPal Giving Fund. Please consider adding us to your account to Shop, Donate and Raise Awareness for our families.
PayPal Giving Fund expands our fundraising reach through direct integration with PayPal, eBay and GoFundMe.
Want to help make a difference while you shop in the Amazon app, at no extra cost to you?
Simply follow the instructions below to select "C.U.R.E. Childhood Cancer Association" as your charity and activate AmazonSmile in the app. They'll donate a portion of your eligible mobile app purchases to us.
How it works:
1. Open the Amazon app on your phone
2. Select the main menu (=) & tap on "AmazonSmile" within Programs & Features
3. Select "C.U.R.E. Childhood Cancer Association" as your charity
4. Follow the on-screen instructions to activate AmazonSmile in the mobile app
Bereavement Group
Bereavement Group occurs on the first Wednesday of every month.
We will be hosting the Bereavement Meeting at the C.U.R.E. office at 7 PM. Please bring a lawn chair so we can enjoy the weather outside!
For more information, please reach out to Michelle Magin.
michelle.magin@curekidscancer.com
Did you know? For children who have experienced the death of a sibling from childhood cancer, SuperSibs offers additional mailings through the Grief and Loss Mailing Program.
This program includes...
💛 Grief support and resources specifically for parents
💛 4 mailings per year for two years with activities designed to help SuperSibs to cope with their grief and feelings
💛 A special remembrance on the anniversary of their sibling’s passing
Learn more about this free program for siblings:
Click Here To Check it Out
We are so grateful to the community for all of the wonderful donations we receive throughout the year. We could not service all the families we do without this generous support. If you or a community group you belong to is looking for something to do for a charity, please consider donating items from C.U.R.E.’s wish list so that we can continue to provide for our families:
A cure for childhood cancer, blood diseases and brain tumors!
- Buffalo Bills items (hats, gloves, socks, etc.) for teen gifts
- Colored pencils/art pencils
- Universal phone chargers with long cords
- Gift cards for Wegmans, Tops, Wal-Mart, Target and gas cards
- Gift cards for GrubHub, McDonalds, Wendy’s, Burger King, Moe’s, Chipotle, Dunkin Donuts and Starbucks
- Crafts for young adults and children
- Items for teens or young adults
- Toys (Please look at our Amazon Wish Lists:
Under $20: https://a.co/hlW4hCO
$20 - 50: https://a.co/eHiQcV2
$50+: https://a.co/bVDujCy)
We ask that all items be new and recently purchased. Thank you!
Get your C.U.R.E. Gear
Rock C.U.R.E. Elite Sport Socks!
These super comfortable and supportive sport socks are HERE! What a great way to show support for C.U.R.E. and small businesses, they are made in the USA! Rock them while you are working from home or out exercising. Sandal season is over, rock these cozy socks today!