April 2022 Newsletter
C.U.R.E. is here.
From the day of diagnosis, throughout treatment and beyond:
The support doesn’t stop when the treatment stops.
And we are so thankful for our friends who make our support possible.
Spotlight on: Ari
Meet our friend, Ari.
Ari is 7yrs old.
He has 2 older brothers.
Some of his favorite outdoor activities are sledding and swimming.
While in the hospital, Ari likes to play the electric guitar and violin with the Music Therapists, watch “The Grinch”, eat waffles with peanut butter and play Legos.
It’s a date!
In-Person events are back!
Congratulations, Kya
Kya rang the End of Chemo Bell at the Knighthawks Game on Saturday, March 26th. Originally scheduled to ring the bell at the Knighthawks game that was cancelled in 2020 due to COVID, she patiently waited TWO YEARS for her opportunity to ring the bell at the game!
Catching Dreams
Catching Dreams Charters, Inc. hosts private fishing charters near Buffalo on Lake Erie or the Niagara River for pediatric oncology or hematology children.
We have connected with Ned, the Founder of this organization, and would love to connect our C.U.R.E. Kids to Ned and schedule some fishing charters! Charters are scheduled for during the week from mid-May through Labor Day and leave from the Buffalo Harbor or near the Niagara River.
Please reach out to Laurie Streb if you are interested in a private fishing charter.
Saturday, April 16th 12-3:00 p.m. Hunt starts at 1:00
Lakefront Lodge 1100 Lake Road, Webster NY 14580
Food, Refreshments, Raffles, Crafts, Jellybean contest
DJ, Truck Displays, 1st Responders and the EASTER BUNNY
$10 per family - BRING your Baskets
C.U.R.E. Families are free
(please contact the office for details -473-0180)
We are once again offering FREE family portraits by That's Darling Photos to our C.U.R.E. families. Check your email for sign up information or call our office at 473-0180.
Don’t miss the second episode of Bringing Sickle Cell Disease to Life podcast and learn how hydroxyurea has transformed the lives of children living with sickle cell disease.
Host Dr. Wally R. Smith, MD, Florence Neal Cooper Smith Professor of Sickle Cell Disease at Virginia Commonwealth University, interviews Drs. James Eckman and Russell Ware on the importance of newborn screening and managing the transition from pediatric to adulthood care
Donate Blood or Platelets!
Many of our children depend on blood transfusions and blood products in the course of their treatment. Our children are in need of blood products and you can help! Please consider donating blood if you are well enough to.
YOU can help C.U.R.E. for FREE
1) Follow us on social media:
Facebook: facebook.com/curekidscancerrochester
Instagram: @curekidscancer
Twitter: @curekidscancer_
(2) Write a review about C.U.R.E. on our Facebook Page or on Google.
(3) Write a blog that can be shared on our website.
(4) Contact our Parent Advocate Michelle about doing a Facebook Live or Instagram Takeover.
(5) “Like”, Share or Comment on our social media posts.
Conquer Cancer in Kids:
make childhood cancer research a priority:
UPDATE: THE PETITION IS JUST SHY OF BEING ONE OF THE MOST SIGNED PETITIONS ON CHANGE.ORG. THE GOAL IS 15,000 SIGNATURES AND AS OF 2/24/2022, THERE ARE 14,658 SIGNATURES!
We invite our families and supporters to join CNN’s Rene Marsh as she advocates to make childhood cancer research a priority! Sadly, Rene lost her two year old son, Blake, to brain cancer in April 2021. She is now working with CNN and childhood cancer awareness advocates to make a difference!
To review and sign the petition, click the button below.
More petitions to sign to show your support for increasing research efforts towards childhood cancer:
GRYT Health connects patients and caregivers to others with shared experience and to information relevant to their journey.
Through the GRYT app, we’ve created a platform for people affected by cancer to connect to others with similar experiences, and to tailored information that helps our users become more aware of options specific to their needs or diagnosis – empowering them to make choices that are right for them.
Our community of patients, survivors, medical professionals, researchers and advocates across all 50 states in the U.S. and in more than 100 countries worldwide have participated in almost 1,000,000 interactions to date, inspiring people to live according to their own standards.
Trust from our community is paramount to our success and something we take very seriously. We never share any of our users’ information without their explicit permission. Unlike other apps, GRYT is the first social community that is funded, built, and run by patients and caregivers where users communicate anonymously in real-time and each person is 100% in charge of what happens with their data.
Thank you, Rochester Knighthawks
Thank you for partnering with C.U.R.E. to provide a fun night out for our Families.
Thank you for highlighting some local children who are battling or have battled cancer.
Thank you for shining a light on pediatric cancer and ways in which our community can help.
But, most of all, thank you for reminding our Families that their community is there for them, supports them and will be there for them throughout treatment and beyond.
Just like C.U.R.E. is.
The Holidays were BRIGHT!
We are so grateful for our Friends at MAC Lights, Dawson Law Firm & Mark’s Pizzeria for thinking of us this past Holiday Season. The Holiday Light Show at Victor Hills Golf Club included a philanthropic component to ticket sales: a portion of every sale would be donated to C.U.R.E.! An incredible $29,254 was donated to C.U.R.E. through the event! The kindness shown to our Families through bringing joy to our Community fills our hearts. The Group also donated free passes so our Families could enjoy the Show and a full pizza dinner from Mark’s Pizzeria free of charge.
Thank you, RDI Diamonds:
We are nearly a year into our partnership and we cannot thank you enough!
Thank you for allowing C.U.R.E. to be your Charity of Choice and for your monthly donations to our organization. You are making the services and programs for our Families possible through your kindness and we cannot thank you enough!
Our Annual Trivia Night was a HIT!
A HUGE thank you to our participants and supporters who made our Annual Trivia Night event a success! Our Board of Directors worked hard to put this event together, especially Melissa Sturge-Apple, Jackie Gigliotta and Joe DiFabio. Thank you to all who attended, donated and helped to make the event so great!
Events are back!
And we need YOUR help!
Stay tuned for specific sign ups, but these are on the horizon.
April 16th: A.P. Enterprises Property Services Easter Egg Hunt
April 30th: 13th Annual 5k and Fun Walk presented by Cornerstone Wealth Management
Need volunteers in many capacities!
June 5th: Survivors’ Day Picnic
If you enjoy working in the garden, please consider spending a couple of hours this spring or summer in our Julie Roberts Children’s Memorial Garden. When you “adopt” our garden for a week, you will weed, prune and make sure the garden looks great to honor our little angels.
Questions? Please call Laurie at 473-0180
Join our Board of Directors!
We have some Board positions opening in the very near future! Interested in applying?
The Board meets monthly for 1.5 - 2 hours (Currently the third Wednesday evening of the month)
Board members must attend two of the three main fundraisers (5k & Fun Walk, Golf Tournament, Brunch)
Board members are on at least one sub-committee
Board members make a monetary donation for the Board sponsored Live Auction package for the Brunch
Applications can be emailed to:
cureboardapplications@gmail.com
Join C.U.R.E.’s YPC!
We are re-energizing our YPC (Young Professional Committee)! If you are a Young Professional looking for an opportunity to get involved with C.U.R.E., meet some awesome volunteers and help our families, we would LOVE to have you!
Please reach out to Board Member, Brian Wainwright, to start connecting!
Click me to email!
We want to connect!
If you served on the Board of Directors for C.U.R.E. Childhood Cancer Association, we would love to stay connected! Please email Holly Dutcher to connect!
holly.dutcher@curekidscancer.com
Registration is OPEN!
REGISTER TODAY!
Calling all Friends of C.U.R.E.: Registration is officially OPEN for our 13th Annual 5k and Fun Walk Presented by Cornerstone Wealth Management!
We can’t WAIT to see you!
Form your team!
Register today!
Every Penny Matters.
Do you want to join forces with C.U.R.E. and participate in our Annual Penny Drive? We make it easy! We can decorate and deliver jugs for your to facilitate your collections. We will also pick up your donations. No change rolling or counting required! Contact our office if your school or business would like to participate!
It makes cents.
New Merch Alert!
We are continuing our partnership with our friends at Embrace the Difference in a new and different way: custom C.U.R.E. bracelets! We have three styles available:
(1) Black cord with gold ends ($25)
(2) Silver and gold beaded ($35)
(3) Braided black cord with black ends ($25)
Each bracelet has a gold charm with our logo imprinted on it.
C.U.R.E. Partners:
Glimpse of Gold's purpose is to encourage people to take the next step, even if childhood cancer is not directly affecting you or your family. Glimpse of Gold hopes to educate others on different ways to help, while encouraging people to think about the topic a little longer than they normally would.
Glimpse of Gold is so excited to be collaborating with C.U.R.E for the next few months! This collaboration involves providing monetary donations directly to C.U.R.E. At the minimum of a $20 donation to C.U.R.E., an embroidered beanie with the slogan “Only Sunshine Ahead” will be given to a child currently going through treatment at Golisano Children's Hospital (For example, if you donate $40 two beanies will be sent to two different children in bright and beautiful packaging to bring some light to their dark times). In return, the first 100 people that donate will receive a silicone wristband with the same slogan as the children’s beanies, stickers, and a thank you note! Please note that all shipping will be coming directly from Sydney Lewandowski and not C.U.R.E.
If you have any questions please contact Sydney Lewandowski. You can reach her on both Instagram and Facebook @glimpseofgold.roc or email her at glimpseofgold.roc@gmail.com
You can now return your cans and bottles to Alpco Recycling and Bottle & Can Retrieval Centers! Let them know you’d like to support “C.U.R.E. Childhood Cancer Association” and a donation will be made to us!
Alpco Recycling is located at:
846 Macedon Center Road, Macedon, NY 14502
Bottle & Can Retrieval Centers located at:
509 Spencerport Rd, Rochester
2199 East Henrietta Rd, Rochester
2374 Chili Ave, Rochester
More ways to help:
Become a C.U.R.E. Ambassador!
The Support Doesn’t Stop When Treatment Stops…
Because of YOU and your kindness.
Support our mission year-round by becoming a C.U.R.E. Ambassador! A C.U.R.E. Ambassador is a donor who commits to our mission through a monthly donation of his/her choosing. Whatever level you are comfortable with makes a difference!
Click here to learn more.
C.U.R.E. has joined the PayPal Giving Fund. Please consider adding us to your account to Shop, Donate and Raise Awareness for our families.
PayPal Giving Fund expands our fundraising reach through direct integration with PayPal, eBay and GoFundMe.
Want to help make a difference while you shop in the Amazon app, at no extra cost to you?
Simply follow the instructions below to select "C.U.R.E. Childhood Cancer Association" as your charity and activate AmazonSmile in the app. They'll donate a portion of your eligible mobile app purchases to us.
How it works:
1. Open the Amazon app on your phone
2. Select the main menu (=) & tap on "AmazonSmile" within Programs & Features
3. Select "C.U.R.E. Childhood Cancer Association" as your charity
4. Follow the on-screen instructions to activate AmazonSmile in the mobile app
Bereavement Group
Bereavement Group occurs on the first Wednesday of every month.
The Group will meet at 7:00 p.m. on Wednesday, April 6, 2022 at our office (200 Westfall Road, 14620). Please email michelle.magin@curekidscancer.com for more information.
We are so grateful to the community for all of the wonderful donations we receive throughout the year. We could not service all the families we do without this generous support. If you or a community group you belong to is looking for something to do for a charity, please consider donating items from C.U.R.E.’s wish list so that we can continue to provide for our families:
A cure for childhood cancer, blood diseases and brain tumors!
- Buffalo Bills items (hats, gloves, socks, etc.) for teen gifts
- Colored pencils/art pencils
- Universal phone chargers with long cords
- Gift cards for Wegmans, Tops, Wal-Mart, Target and gas cards
- Gift cards for GrubHub, McDonalds, Wendy’s, Burger King, Moe’s, Chipotle, Dunkin Donuts and Starbucks
- Crafts for young adults and children
- Items for teens or young adults
-Toys (Please look at our Amazon Wish Lists:
Under $20: https://a.co/hlW4hCO
$20 - 50: https://a.co/eHiQcV2
$50+: https://a.co/bVDujCy)
We ask that all items be new and recently purchased. Thank you!
Get your C.U.R.E. Gear
Rock C.U.R.E. Elite Sport Socks!
These super comfortable and supportive sport socks are HERE! What a great way to show support for C.U.R.E. and small businesses, they are made in the USA! Rock them while you are working from home or out exercising. Sandal season is over, rock these cozy socks today!
